Bizarrely, having felt amazingly well for the last two or three weeks, I have developed a rash. I have, belatedly, become a spotty teenager. Having phoned the hospital to report this, as required of any new development or change in "wellness," I was asked to go in and be inspected. It transpires the rash is probably not catching, but as my consultant is not a "rashist" (his terminology) I am to be referred to a dermatologist just to make sure. I also, unsurprisingly, have more tablets to take. Not many - just a weeks boost (5 a day instead of 1) of my antiviral, and some antihistamine to stop the itching. That's working already; what a relief : )
I'm also starting to notice benefits since my steroid dose has been reduced, fairly drastically, to 40 tablets a month, down from 240. The hamster cheeks are subsiding, which should mean there's less room for the itchy spots to reside. Bonus! And the proximal myopathy (wobbly legs, particularly on sitting and standing) is definitely subsiding in sympathy with the retreating hamster face. So much so that I was getting quite excited at the prospect of sufficient snow for tobogganing. But the snow came to nothing, which is just as well as I'm not truly up to tobogganing in body, although in spirit I'm perched at the top of that slope and ready to go!
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